Müllerian (Hattori) Mediastinal Cyst Awareness & Patient Stories
A rare diagnosis, explained in plain language. Resources, research, and one patient’s journey.
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Welcome
What is a Müllerian (Hattori) Cyst?
A rare, benign cyst. Mine was found in my posterior mediastinum (the space in the chest near the spine, esophagus, and aorta).
First described in 2005 by Dr. Hattori.
Almost exclusively affects women, usually discovered by accident during imaging.
Typically noncancerous, but can cause symptoms if large enough to press on nearby structures.
Read the full overview
I was diagnosed with a Müllerian cyst of Hattori at age 41. My cyst is about 2 cm, located near my aortic arch, and was found during scans for my Ankylosing Spondylitis (yay, another rare disorder). At first, all I saw online were medical journal articles full of technical terms. That’s why I decided to start documenting everything here. The tests, the waiting, the emotional side, and what I’ve learned from doctors and research.
Follow My Journey
If you’ve found this site, you or someone you love may have just been told they have a “Müllerian cyst of Hattori” or a “posterior mediastinal cyst.” When I first read those words on my MRI report, I felt overwhelmed and alone. This condition is incredibly rare, with only a few dozen cases have been documented worldwide. And information is scattered across medical journals, and hard to follow.
This website is here to change that. I’m sharing my own journey, alongside reliable research and resources, so that anyone facing this diagnosis has a place to start.
